Liam was born healthy in 2007 with no issues identified at birth. At 8 months, he began to exhibit what we called “brown outs.” His entire body fell limp and his head would drop. He was diagnosed with Infantile Spasms, a rare and “catastrophic” form of epilepsy. The frequency of his seizures increased over time and reached a peak of over 120 per day.
Following a myriad of anti-epileptic medications, including an investigational drug trial, nothing was effective in consistently suppressing his seizures. Two years into this journey, we started Liam on the Specific Carbohydrate Diet, which consists of only lean proteins, fruits and vegetables. Within two weeks his seizures were reduced to between 0 and 6 per day. This success lasted for about 6 years.
In early 2015, the frequency and severity of his seizures increased dramatically. He was having 20 or more very impactful seizures, each of which caused him to fall, creating a very unsafe situation for him. We started him on CBD oil and after several months, he is back to the baseline of 0 to 6 seizures that we experienced following the Specific Carbohydrate Diet.
Liam is severely developmentally delayed due to the catastrophic nature of Infantile Spasms during his early years. He is non-verbal and is unable to communicate in a meaningful way. However, he is one of the happiest kids you’ll ever meet and loves to dance and wrestle with his sisters, who are experts at making him belly laugh.
Following a myriad of anti-epileptic medications, including an investigational drug trial, nothing was effective in consistently suppressing his seizures. Two years into this journey, we started Liam on the Specific Carbohydrate Diet, which consists of only lean proteins, fruits and vegetables. Within two weeks his seizures were reduced to between 0 and 6 per day. This success lasted for about 6 years.
In early 2015, the frequency and severity of his seizures increased dramatically. He was having 20 or more very impactful seizures, each of which caused him to fall, creating a very unsafe situation for him. We started him on CBD oil and after several months, he is back to the baseline of 0 to 6 seizures that we experienced following the Specific Carbohydrate Diet.
Liam is severely developmentally delayed due to the catastrophic nature of Infantile Spasms during his early years. He is non-verbal and is unable to communicate in a meaningful way. However, he is one of the happiest kids you’ll ever meet and loves to dance and wrestle with his sisters, who are experts at making him belly laugh.